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Posted Monday, July 30, 2007 9:20 PM Post #13784
Anonymous 
Hello everyone,
I have been reading this forum on and off for the past few years, and have really enjoyed it. When I get the time I would like to properly introduce myself and tell my story. Forgive me if I come across cenacle at times, most times its the sorrow that engulfs me but for shear survival I sometimes come across with some dry humor, which I think for some people on this forum, can be appreciated.

A quick background on me, I Grew up in the CS church, my mother is a Practioner. I Went to Cedars Camp for 16 summers. left the CS church at 15 or so and have never looked back.

My 86 year old mother has recently sold her house and moved across country to some sort of CS nursing/retirement place. She just up and left all her children and grand children. Everyone in her wake is just left dumbfounded and numb. Its like watching an addict finally lose it all and you cant do anything about it. I cant seem to find the name, but if someone knows of it I would recognize the name. Its in California. My understanding is basically she gave them all her money and has bought in to this place and in return she has a place to live for the rest of her life. They have some apartments and a nursing home. I am vauge about these details, but I don't know much, my mother keeps them very much to her self. I am getting most of my information from my brothers. The reason she chooses to keep any information from me is because she believes I practice M.A.M on her or against her or how ever that works. Believe me, as a mother of 2 very active toddler boys if I could in any way telepathicly get them to behave I would have done it! So I think is very unlikely I am the cause of her illness that dosnt even really exist. But thats another story...

She has a very serious medical condition that for the past couple of years has spiraled out of control. i would say she has spend close to 100 thousand dollars on 2 different CS nursing home stays, and private CS nursing care. The private ambulance ride alone cost about 3-6 thousand dollars, once to a Texas CS nursing home and once to a Flordia CS nursing home. Her condition gets so bad she cant even ride in a car. I cant imagine what a trip across country would cost if she ever decided to return to her home. When her pain gets to uncontrollable, she ends up in the hospital and in a week or so is fine. She will then stop her meds and get sick again, each time the duration between times gets shorter and shorter. My guess is the second the plane landed in CA she stopped her meds. Her medical condition is controlled by very little medical intervention. She has congestive heart failure, and simply needs a water pill and she is GREAT, but without it she spirals out of control very fast. Watching someone you love suffer the kind of pain she endures is gut wrenching. She ends up gaining like 100 pounds, she cant walk, she cant go to the bathroom, she cant even lie in a bed, she has had to buy special lift chairs and just lays there and moans and come and goes out of conciouness. Her body does this weird thing called third spacing, where the fluid build up is so bad water starts to ooze out of her pores. her legs get as big as tree trunks. My nightmares are she will end up in some medical nursing home in CA and end up dying alone. Here is where my questions for today come in...

Will they let her take Medicine there?

If she cant take medicine there and ends up doing the back and forth to the hospital thing, Do they just keep taking her back?

If they wont take her back does she then just end up in a state nursing home? (She is more than welcome at my home, but with my practicing M.A.M, I don't think she would chose that option, LOL)

If they wont take her back, what about her investment?

Isn't this incredibly sad!

Jill in Michigan





Posted Tuesday, July 31, 2007 6:49 AM Post #13785
 

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Welcome Jill!

Your story sounds so familiar and probably hits very close to home with more people than you can even imagine!  I totally can relate to your position regarding your mother just up and moving and also having to live under the accusation of you practicing "M.A.M."  It is hurtful beyond imagination when all it is a deep love for the person and a sincere concern.  It is as if they are accusing one of being the devil himself!

I am no expert, but as far as I know the CS facility will not allow medicine.  Since they are not qualified and are forbidden to diagnose and treat disease, they would more than likely refuse to accept a patient that is in need of medication.  I was even told that they do not follow dietary recommendations.  They don't even treat dehydration properly.  How could they, if they don't even diagnose or treat disease?  My mother died in one of those facilities and I belive her death was caused by CS and was even  hastened by the lack of common sense treatment.  She also cut off all communication from the family at the end.  We never even got to say good-bye or acknowledge the death in a normal way.  CS causes so much hurt and pain to families that I believe this is one of the main reasons it is quickly dying.  The ridiculous fear of M.A.M. creates unnecessary and painful estrangements.  It was always so strange to me that they believed that evil was not real but were obsessed with worrying about people's thoughts! 

 

Posted Tuesday, July 31, 2007 2:28 PM Post #13786
 

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My dad went to a "regular" nursing home earlier this year because the CS home wouldn't even allow him to have an oxygen tank! Though this is quite sad, it was also an answer to prayer because he accepted the Gospel in that "regular" nursing home. My dad was CS all of his life (as well as a 40-year church board member) until that day. So dig in deep in prayer that God would move upon your mom's heart, Jill, & never give up!

zoarean
Posted Friday, August 17, 2007 2:59 PM Post #13827
Anonymous 
This nursing home is in San Francisco. It is called Arden Wood. My grandmother and her twin sister lived there for years. A beautiful old Tudor mansion with amazing gardens. I do believe they were well cared for there only because they didn't have any kind of medical issues. They had their own rooms and I suppose were in a wing for those who didn't need constant care. They both died of old age but had they had any medical issues, I don't believe they would have been properly cared for at Arden Wood because the CS nurses know absolutely nothing about medicine or medical issues.


Posted Friday, August 17, 2007 8:22 PM Post #13828
Anonymous 
Of course CS nurses know nothing of medicine or medical care. What would be the point? I stayed at the BA in SFO 50 years ago for a week. My mother thought it would be a 'good' idea. What fabulous setting! I often wondered 'what happened to the place.' Thanks for the post.
Posted Saturday, August 18, 2007 2:54 PM Post #13829
 

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Of course CS nurses know nothing of medicine or medical care. What would be the point?

Caregiving becomes dangerous when caregivers don't recognize (or, at least, won't treat) basic "medical" problems like dehydration. I have always wondered why, if a CSist will take liquid by mouth, he or she considers it spiritually counterproductive to take liquid directly through a vein. Either way, the liquid is entering the body for the same purpose. Any CSist who has ever said, "I'm thirsty," should be willing to admit that adding liquid to the body is addressing the condition called "deyhdration."

I know that, when people enter a CS nursing home, they do so with the understanding that they will not receive painkillers -- or even food and water if these have to be given by any means other than swallowing. But I suspect that many of these people simply don't understand the benefits of these simple measures and the consequences of not receiving them. Sometimes simple "medical" intervention like an I.V. for dehydration can get a person through a rough spot and allow them to get better, but not receiving that intervention costs them their life. That's a tragedy.

Posted Saturday, August 18, 2007 8:11 PM Post #13830
Anonymous 
"Sometimes simple "medical" intervention like an I.V. for dehydration can get a person through a rough spot and allow them to get better, but not receiving that intervention costs them their life. That's a tragedy."

Well, I say again. What's the point? They (who want medical care) belong in a medical facility. We're back to Square One, tragedy or no. Maybe a solution would be to [deleted by Moderator - while likely intended in jest, the proposed solution is inappropriate even to suggest as such].
Posted Sunday, August 19, 2007 7:26 AM Post #13833
Anonymous 
Linda....your remarks about dehydration, etc. (water through IVs or the natural way) struck me as something that might come from a person who, from memory, might name the 'founder' of CS as Mary Eddy Baker, if you get my drift. It's as though all your 'class taught' reminders to the posters here have withered on the vine, like (sorry) you never 'got it' in the first place. There are some people who would just rather DIE than succumb to medicine and all its inconsistencies and corruption. Why is that so hard to believe? It is hoped that this won't lead to a tirade about children in order to get off this minor topic. My solution was not in jest, btw. It has worked for abortion clinics now and then.
Posted Sunday, August 19, 2007 9:15 AM Post #13834
Anonymous 
Dear Friends,

I love the sincere care and love this site is trying to offer family members. My story is just the opposite from many of the stories here. My family practices Christian Science, except my Dad. All the time we were growing up Dad went to the hospital, had operations that never seemed to heal what he had, and only left him unable to walk. My mom, however lovingly supported him in the decisions he made. Then finally at 78 my dad was told that he had a fatal blood disease, and there was no cure.

He at last decided to use Christian Science and was completely healed. He joined the church, and is looking for new ways to tell others.

I can only say, because many here are Christians, that the anwers lies in asking "How can I humbly love this family member and support their decisions about their life?" That is what we happily did throught the years with my father. Christianity is about love. And that is what we will continue to do, what ever decisions are made. We never critized, judged, pushed, or undermined, decisions about healing in our family. But trusted that there is an almighty God, and God is speaking to everyone of us.



Shelly
Posted Sunday, August 19, 2007 4:34 PM Post #13835
 

OldtimerOldtimerOldtimerOldtimerOldtimerOldtimerOldtimerOldtimer
Linda....your remarks about dehydration, etc. (water through IVs or the natural way) struck me as something that might come from a person who, from memory, might name the 'founder' of CS as Mary Eddy Baker, if you get my drift. It's as though all your 'class taught' reminders to the posters here have withered on the vine, like (sorry) you never 'got it' in the first place.

No, I haven't forgotten anything -- and I did "get it." When I was in CS, I considered an IV to be "medical' as much as any CSist does. I didn't realize the absurdity of the "mouth vs IV" issue until several years after leaving CS, when I heard about a practitioner giving liquid, by mouth, to an unconscious child. I was very disturbed by the idea of giving liquid to an unconscious person because of the choking hazard is presents, and the absurdity of the "mouth vs IV" issue became clear. "What's the difference," I asked myself, "between giving liquid by a straw in the mouth and a straw in the arm? Why would a practitioner think it's spiritually acceptable to deliver liquid to an unconcious kid's mouth but not his arm?" Of course I knew the answer (a straw in the arm is, by definition, "medical"), but the question highlights the absurdity of the "medical" vs "non-medical" issues people often face in CS.

I understand that you and others avoid doctors because of their shortcomings, but that's not really the point here. Everyone should (and most do) approach doctors with the understanding that they are seeking help from a bunch of flawed people using an imperfect healing system. That's a huge difference from CS, which is presented as a perfect healing system. If you'll forgive the business analogy -- consumers of medicine are told that there are risks, while consumers of CS are told that, if they apply the system correctly, there are no risks. That's an apples-and-oranges situation in my opinion.

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